“I have used social media to tell my friends instead of having to call them. I think this is because I really thought that since I tested negative for the BRCA1&2 genes and had checkups since I was 30 because of my mom’s own breast cancer history I was in the clear. “
“I knew very little, especially about metastatic breast cancer. I never considered myself at risk, and certainly didn’t know the statistics, like that 1 in 8 women will get breast cancer in their lifetimes, and 30% of those diagnoses will metastasize, and that metastatic disease only receives 7% of funding for research but still has a life expectancy under 4 years and kills 114 people each day.”
“When I was first diagnosed with Stage 3c Ovarian Cancer, I had an incredibly tough time throughout treatment, however I could see the light at the end of the tunnel. I ended up becoming NED (No Evidence of Disease), even though there was a high chance of recurrence, I could rationalize that maybe, just maybe, I’d had bad luck in getting this disease, but it was just a one off and I’d miraculously “beat it”. However once it recurred, it became clear that it would just keep coming back. I had to adjust my mindset to cope with the fact that I would always be living WITH cancer.”
"When I was diagnosed with ovarian cancer, it came out that I had an aunt (my dad's sister) who died of ovarian cancer, but they kept calling it "stomach cancer". If you have anyone in your family who talks about "stomach cancer", you may want to ask more questions, because it could really be a gynecological cancer that they are covering up.
Also, my uncle died of lung cancer, which really ended up being lymphoma that went into his lymph nodes. When it comes to family history, depending on your family's culture, there can be "taboo" issues. It’s so important to get past those taboo topics to get the information that you need for your health."
“At the end of the day, you know your body more than anyone, if something doesn’t feel quite right, question it, demand more tests. I didn’t. I took everything they said and accepted it ("You’re ok, its just pains form your period, its the cysts they come and go, its cant be more than that you’re too young, its your diet- change your diet, here some painkillers you should be fine within a couple of days") If something doesn’t feel right, over and over, don't just numb with with painkillers or other meds, get checked out, get a second opinion.”