I wish that more people understood how dangerous OVCA is. That is has a frighteningly high recurrence rate, and that there is NO FORMAL DIAGNOSTIC TEST. A Pap smear tests for cervical cancer, not ovarian. Because of this, you have to stay extra vigilant. If you feel off, ask your doctor for a transvaginal ultrasound. If you still feel off, ask them for a CA-125.
"I wish people knew about the symptoms, the seriousness of the disease and overall just felt more comfortable talking about ovaries and gyn stuff in general. I've heard so many stories of women not truly knowing their family history because their relatives called it 'lady cancer' or something else. After my second diagnosis my genetic mutation was upgraded from a "variant of unknown significance" to BRCA2. I found that almost all the information was geared towards breast cancer. I also found that there was so many more resources for breast cancer patients, Ovarian cancer needs more!"
"Well, two women who dealt with breast cancer contacted me early on. They both said, 'you will be so strong after this.' I thought 'no way, I’ll be this broken woman.' But I am so strong and I feel things more. It sounds so cliche, but being so in touch with mortality makes you a different person. When people complain about colds, I have to hold myself together (haha)."
"I wish more people were aware that there is more than one type of ovarian cancer. The cancer I had behaved very differently than the cancer postmenopausal women get, and has very different outcomes. And yes, I can still have kids (definitely the most-asked question when I tell someone I had ovarian cancer). I also wish more people were aware of how important it is to advocate for your own health, not just for ovarian cancer or even any cancer, but for life in general."